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June 17, 2009

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Stephen

Yes, not everyone gives up their seat to an elder or to a disabled person anymore. I think it is sad. The whole world needs to be made as accessible as possible.

I am a disability rights advocate myself. I have spoken nationally on the conference circuit on disability etiquette and disability awareness. In the past, persons with disabilities were treated very poorly. When I was diagnosed with Autism, my mom was told to lock me away in an institution. I was never placed there, and I am a college grad now.

I started researching this about four years ago myself. I had many social challenges related to school, and I had to be taught things like "how does one make a friend?" or "how does one get involved with others at recess?", etc. For much of elementary and middle school, I did not have many friends because of this!

Some of the things I hope you include in your disability etiquette section include:

* Disability is not something to be make fun of. One should adapt if one has to do things a different way because of their inability to move a body part, or if they cannot see or hear, for example.

* If one uses an alternative communication system, the persons friends, family, and co-workers should show courtesy by learning to understand it, and even use it to respond back.

* If one has a sign language or interpreter with them, allow them extra time to respond.

* Seeing eye dogs and monkey helpers should never be petted without permission.

* Chivalry should extend to holding doors and elevators open for those in wheelchairs

* When in a school environment, a person with a disability who has an aide, paraprofessional or interpreter with them is an exception to the "Don't go near the kid when an adult is present rule". Often students unaware of this exception leads to people with special needs not having many friends. Read this URL for more info on this: http://www.uvm.edu/~cdci/parasupport/reviews/EC0571(4)415-430.pdf

* Never call anyone retarded.

* Sometimes noises bother people.

* If a person in school gets special accomodations (such as extra time on tests, speech therapy, occupation therapy, alternative assignments, use of special equipment or technology, etc) that are related to their disability, do not think that it is unfair, because the person may not be able to complete their assignments or tests without them.

* Buildings should made as accessible as possible.

Another thing to remember is that many kids with special needs require more support in what I call the "Hidden Curriculum" (Brenda Smith-Myles also uses this term). The hidden curriculum is a term that refers to the "unstructured hours" of the school day which includes lunch, recess, passing period, before school, after school, assembly time, school spirit days, and the like. Many of these activities aren't taught formally, and for those that have trouble mastering them on their own, this can be a nightmare. If you look, there are a lot of skills one has to know to understand all the games and sports played at recess. Another part is understanding how to do things like "Twin Day" and find a friend who has the same clothing. The same is true with inviting kids over to the birthday parties. I for example, did not understand the meanings of "joke phrases" and "joke names" like "homie" and "home boy". The same is true with all the proper dress, table manners, dance moves, and dating used when kids in high school go to ASB Ball and Prom. Audience clapping was also something I did not know the reasons for back in third grade in regard to assemblies. So when you look at it, there is a whole curriculum that is "hidden" and schools typically offer no instructional time to.

Often, I beleive that school bullying and other school discipline issues are caused by kids who are failing the hidden curriculum.

I would love to see a better future for those in special ed. If you would like to contact me on this, e-mail me at stphinkle@aol.com. I also know many famous presenters on this in addition to myself.


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